Showing posts with label Kionex. Show all posts
Showing posts with label Kionex. Show all posts

Sunday, December 21, 2008

Potassium too low

This morning my head became hot and I couldn't hear anything except a loud ringing, and I almost vomited. We looked it up on the internet and loud ringing is a side effect of having a dangerously low potassium level. The new nephrologist, I saw on Monday, Dec 15th told me to take Kionex every day. But it must have lowered it too much. I ate some high potassium foods and the ringing hasn't come back. I started taking protein supplements I read about in my Kidney Disease book by Dr. Walser. I feel a little pressure in my chest sometimes, where my heart is, I hope I am imagining or it goes away. We don't know how to decide who should try to donate. I wish nobody had to. I can't make that decision, I am scared for my brother and sisters. I can't find any info on the internet telling me if it is safe for Hector to donate if he has kidney stones. They told him they are tiny and he has 4 in one and 2 in the other, he never knew he had stones. My GFR last Monday was 5.

Thursday, December 11, 2008

Emergency Room


Spent the day at the emergency room at Woodland because my potassium result from yesterday was at 6.4 . Another blood test today showed that it went back down to 5.1. But my BUN went up to 106 from 88 (last Wed). I am taking Kionex powder to control my potassium and seeing a new nephrologist on Monday. My theory is that they gave me too high a dose Epogen for too long, which raised my blood count too much, which depleted my iron and raised my blood pressure a lot. And that must have made my kidneys even worse but the doctor disagreed. I think it makes sense. The ER doctor admitted that he is not familiar with the Epogen drug and neither is my primary doctor. I should have done more research on it. My brother's latest results are not back from out of state so my case won't be reviewed this week, so the transplant is off for now. I hope they tell us the new date soon. My kidneys are getting worse fast.